Laylah W

When we think about developmental delays, we often picture children who simply need more time or support to reach certain milestones. But Angelman syndrome is something much more complex. It’s a rare genetic neurodevelopmental disorder that affects balance, movement, communication, and overall brain function. Despite its challenges, people with Angelman syndrome often have a uniquely warm, happy, and resilient presence, something many families talk about. Still, the condition requires...

Introduction: When Sleep Takes Over “Just wake up.” It sounds simple. For most people, sleep is something we enter and exit every day without thinking. But for individuals with Kleine–Levin Syndrome (KLS), waking up is not always possible. Sleep becomes an overpowering neurological state, one that can consume weeks, distort reality, and erase time. Often referred to as Sleeping Beauty Syndrome, KLS is a rare neurological disorder that disrupts the brain’s ability to regulate sleep,...

Most people think of broken bones as temporary injuries, painful, but fixable. But imagine a condition where your body creates extra bones  on its own, turning soft tissue like muscles, tendons, and ligaments into solid bone. That’s the terrifying reality of Fibrodysplasia Ossificans Progressiva (FOP), a rare, inherited disorder that slowly traps people inside a “second skeleton.” It’s one of the rarest diseases known to science, affecting only about 1 in 2 million people worldwide. And...